Your Rights
The epilepsy community is strong, and we fight for our rights in Congress with one hand and give generously to epilepsy organizations with the other. However, we must not only support our representatives and nonprofits, but we MUST also hold them accountable. Here we provide information. If you want an opinion, you will have to tune in!
If you, like many, are frustrated with the current political system, check out former Labor Secretary & Berkley Professor Robert Reich’s video on 10 things we can do to facilitate change.
A landmark initiative to improve epilepsy care, research, and public awareness across the United States. This legislation requires the U.S. Department of Health and Human Services to develop and maintain a comprehensive national epilepsy plan, with annual progress assessments to ensure accountability and effectiveness.
The National Plan for Epilepsy Act
The epilepsy advocates behind the initiative
The initiative was introduced and championed by the co-chairs of the Congressional Epilepsy Caucus. It’s important to reach out to your representatives when you want change; it’s also important to reach out when they make that change happen. I encourage everyone to reach out to the following and say thank you:
U.S. Senators
Jim Costa (D-CA)
(202) 225-3341
Greg Murphy (R-NC)
(202) 225-3415
U.S. Representatives
Amy Klobuchar (D-MN)
(202)224-3244
Eric Schmitt (R-MO)
(202) 224-5721
The Unchecked Power
of Insurance Lobbyists
Legacy media touts ‘Dylan’s Law’ as a win for the epilepsy community; the family behind the law doesn’t agree.
Oklahoma Governor
Kevin Stitt
Vetoed the Bill
that would have required broader insurance coverage for epilepsy treatment, including medications, surgeries, and physician-prescribed neurostimulation devices designed to reduce the risk of severe or fatal seizures.
