Your Rights
The epilepsy community is strong, and we fight for our rights in Congress with one hand and give generously to epilepsy organizations with the other. However, we must not only support our representatives and nonprofits, but we MUST also hold them accountable. Here we provide information. If you want an opinion, you will have to tune in!
Make sure your voice is heard!
Add your comment on Regulations.gov to make sure seizure rescue meds are on every flight.
A landmark initiative to improve epilepsy care, research, and public awareness across the United States. This legislation requires the U.S. Department of Health and Human Services to develop and maintain a comprehensive national epilepsy plan, with annual progress assessments to ensure accountability and effectiveness.
The National Plan
for Epilepsy Act
The epilepsy advocates
behind the initiative
The co-chairs of the Congressional Epilepsy Caucus introduced and championed the initiative. When you want change, reach out to your representatives; when they make it happen, reach out again. I encourage everyone to reach out to the following and say thank you:
Yes, I saw the exchange between the senators. YIKES!
