Epilepsy
News
Health & Lifestyle
Arkansas Will bolster services for kids with disabilities after public outcry over long waitlist.
BY TESS VRBIN, ARKANSAS ADVOCATE
The move comes after families have taken to social media to highlight the waitlist and obstacles in receiving needed services, with posts that have been shared thousands of times.
The parents include Paige McCammon, who posted a Facebook video of her son Turner’s seizures on Sunday as part of the ongoing effort to bring Arkansas leaders’ attention to children with disabilities. Turner has severe epilepsy and a neurodegenerative condition.
Epilepsy is an invisible illness. This is what daily life with it looks like.
BY TALLULAH BROWN VAN ZEE, WASHINGTON POST
Two years ago, Luca was diagnosed with epilepsy, a neurological disorder that causes recurring seizures, which are bursts of abnormal electrical signals in the brain. Symptoms can include a staring spell, a brief loss of consciousness, confusion, muscle limpness or even uncontrollable jerking movements known as convulsions.
Luca’s seizures consist of staring spells, with flickering eyelids and a loss of consciousness. His seizures can be triggered by flashing lights, or a lack of sleep. He’s able to control his seizures with medication as long as he takes it at the same time each day, morning and night. Though he has been seizure-free for over one year, each member of his family is on edge, prepared for a seizure to occur at any time.
From treating his epilepsy with weed as a teen, this 32-year-old is now a multimillionaire cannabis entrepreneur
BY HELEN ZHAOI, CNBC
At the age of 14, Joshua Haupt woke up in an ambulance. He was supposed to be in school, but he had suffered a seizure at the breakfast table. Later that day, Haupt was diagnosed with epilepsy.
That diagnosis eventually led Haupt down the path to become an entrepreneur in the cannabis industry. Today, Haupt, 32, is worth millions, including a 16 percent stake in Medicine Man Technologies.
Business & Politics
Supreme Court win for girl with epilepsy expected to make disability lawsuits against schools easier
BY LINDSAY WHITEHURST, ASSOCIATED PRESS
A teenage girl with a rare form of epilepsy won a unanimous Supreme Court ruling on Thursday that’s expected to make it easier for families of children with disabilities to sue schools over access to education.
The girl’s family says that her Minnesota school district didn’t do enough to make sure she has the disability accommodations she needs to learn, including failing to provide adequate instruction in the evening when her seizures are less frequent.
New California Bill That Addresses Transportation Hurdles For People With Epilepsy
California Senate Concurrent Resolution No. 124 -(SCR 124) Authored by Senator Scott Weiner
